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7 weeks…what an experience so far. (very long post)

It has been 7 weeks since Corrigan had his feeding tube procedure.  Seven weeks of messes and frustration (for Mama!) but he handles it all like a champ. The tube has not slowed him down one bit. He...

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relief.

It is 4am and I cannot sleep. My thoughts are swirling in my mind and I know that the only way to stop the the ride is to spit them out right here.  In general, 4am blog posts are never happy ones....

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How to work an IV pole into a child’s room re-do.

We have been in our house for 5 months now and with the arrival of our dining room set (and recent addition of a sectional for the den) all of the rooms are finally filled with furniture!  Connor’s...

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He’s not heavy, He’s my Brother (#2)

We have never had any sort of respite nursing for Corrigan’s care and aside from Mark and I, there isn’t anyone that knows about Corrigan’s medications, and how to feed him, should Mark and I be...

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He can’t swallow.

My baby can hardly swallow and no one can tell me what is the matter. We are losing ground here with feeding and while I am thankful that we have alternate-means to administer nutrition, we didn’t...

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Sick Day: August 6, 2012

Every evening, for the last three nights, Corrigan has vomited.  In the “old days” a single episode of vomiting would have sent us racing to the ER, but as time has passed we quickly learned that a...

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A boy, a ball and a backpack. (a g-tube update of sorts)

Corrigan has had his feeding tube for four full years now and it is now as much a part of his life, and body, as the nose on his face.  Prior to the feeding tube my life revolved around teaspoons of...

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just keep swimming, swimming, swimming….

Summer is still going great though there are only a few days of summer school remaining, so filling the days will soon become more of a challenge but for now, swimming in his little inflatable pool is...

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